Sharie initiated Lipoedema UK’s 2012 patient survey which uncovered that only 5% of lipoedema patients had been diagnosed by GPs. The findings of the survey led to her involvement in the RCGP’s e-learning course on lipoedema and Wounds UK Best Practice Guidelines for the Management of LIpoedema. Sharie was an advisor to the BBC1 News team’s feature on lipoedema and is a member of the European Lipoedema Forum. In 2020 Lipoedema UK will be working on new research projects, continue raising awareness at Healthcare Professional events and launch a training programme for LIpoedema UK Ambassadors.
Judith Whatley is a Senior Lecturer in the School of Sport and Health Sciences at Cardiff Metropolitan University lecturing in research methods and bodywork. A Psychology graduate, she holds a Masters in research methods in social science, is a fellow of the Higher Education Academy, and a reflexology practitioner. Her research centres around breast cancer related lymphoedema and reflexology - publishing in 2016 and 2018. She has also completed research into the use of thermal imaging and the progress of lymphoedema in real time, and is currently exploring the impact of reflexology lymphatic drainage on a range of other conditions.
Rebecca is the Macmillan Lymphoedema Advanced Nurse Practitioner at the University Hospitals of North Midlands NHS Trust. She is a member of the children with lymphoedema special interest group and a member of the scientific committee of the British Lymphology Society (BLS) of which she was chair for five years and is now a trustee. She is a regular presenter in both national and international conferences and is on the editorial board for the Journal of Lymphoedema and the British Journal of Community Nursing’s Chronic Oedema supplement. In 2017 she won the British Journal of Nursing Chronic Oedema Nurse of the Year award and in 2018 was a finalist in the Nursing Times awards.
Rucha holds a master’s degree in microbiology and has worked in the academic publishing industry for almost 15 years now. Before joining the Mark Allen Group as the editor of the British Journal of Community Nursing at the end of November 2018, she ran a small editing business of her own from home, where she would help non-native research writers have their work published in top-tier journals. Rucha has also worked at various research laboratories in the past, including a virology institute and a molecular biology lab.
Gabriele Erbacher has been a psychologist and psychotherapist in the Foeldi Clinic- European Center of Lymphology - in Hinterzarten, Germany, since 2013. Her special working fields are the psychological assessment and treatment of obese patients within the obesity programme. In this multimodal programme severe obese patients are being prepared for bariatric surgery. Furthermore, she is a specialist for the treatment of patients suffering from lipoedema. In the Foeldi Clinic she has implemented the first psychotherapy group for lipoedema patients that complements the comprehensive therapeutic approach. She also is a member of the European Lipoedema Forum, which is the international expert group that created a consensus on the diagnostics and treatment of lipoedema that will be published in February 2020. Gabriele is the co-author of the article series about Lipoedema - Myths and Facts that has been published together with Dr. Tobias Bertsch and she is lecturing worldwide about lipoedema.
Mary is a qualified nurse specialising in the field of cancer related lymphoedema. As professional lead and clinical expert in lymphoedema at The Royal Marsden Hospital, she provides a rich source of knowledge for her team, other therapy services and the wider professional groups. Her educational role facilitates the training of health care professionals in all aspects of care for the patient with lymphoedema. Mary has an acknowledged national and international reputation. She has published and presented widely, contributes to national working groups to improve the care of patients with lymphoedema and is an external expert for the development of European quality standards for breast cancer services.
Dee began her caring profession at the age of 14 years when her first love of looking after others was encouraged on work experience from school. After finishing her grammar education, Dee joined H.M. Forces to commence her nurse training. Travelling the world and nursing a diverse array of conditions. Dee remained in the army for six years. Once in civilian life, Dee progressed onto nursing complex conditions in High Dependancy units, orthopaedics and cancer care. Having progressed her education in care from Enrolled Nurse to Registered Nurse, Dee then went on to specialise in tissue viability, collaboration and palliative care. It was with the latter that Dee found her natural talent of connecting with people with swelling and painful limbs. She has specialised in the management of swelling since 2011 and devotes her time to actively listening to patients' concerns and providing individualised treatments for each and every person.
Margaret is the current Vice Chair of the British Lymphology Society (BLS) and is leading the 2020 #EveryBodyCan Campaign to promote being active with Lymphoedema. She has championed Lymphoedema and Lymphoedema education for over 30 years in both clinical, education and senior management roles and as a member/trustee of BLS. Her passion for, and contribution to, improving practice, awareness and knowledge of Lymphoedema has been recognised in several awards including the Chronic Oedema Nurse of the Year (BJCN), Outstanding Achievement in Lymphoedema Education (International Lymphoedema Framework) and Lifetime Achievement Award (BLS).
Tracy has been involved in the field of lymphoedema for 30 years initially as a lymphoedema patient, then a District Nursing Sister with a special interest in lymphoedema and finally as a Lymphoedema Nurse Specialist. Having set up and run a successful lymphoedema service in Yorkshire for over 20 years, she was awarded the Lymphoedema Nursing Award in 2011 for the introduction of a key-worker service in the community. In 2015 Tracy moved to take up her current position with Sigvaris being responsible for clinical information and assessment, education (including the development of CPD modules for Chronic Oedema and Venous Leg Ulceration) and product innovation. Her passion for managing Chronic Oedema has never faltered and she feels that the more we are able to provide effective therapy, the better our patients are going to respond. Tracy has presented at national and international conferences and published several papers related to lymphoedema and Chronic Oedema management.
Jeanne started her lymphoedema career in the early 1990s, setting up the lymphoedema clinic in Durham. She then moved into a specialist clinical role across South Durham, Teesside and North Yorkshire, and in 2013 set up the Lymphoedema Service based in Imperial Healthcare Trust at Charing Cross Hospital. Jeanne is now the Lymphoedema Nurse at St Teresa’s Hospice in Darlington, where her passion for education continues; she currently runs several lymphoedema courses, including a rolling program of study sessions for non-specialists, a basic Practical Skills course, and the Advanced Practice Lymphoedema module which includes training in Casley Smith MLD. As a Casley Smith MLD teacher, Jeanne is a member of the Macmillan Lymphoedema Association, part of Casley Smith International.
With a background in vascular surgery & District nursing, chronic oedema & lymphology have been the focus of Sue’s nursing career for the past 30 years. As a District nurse, Sue was involved in developing a community leg ulcer clinic & following the 1991 QNI Award for Innovative Practice, a community based lymphoedema service. Since 1997 Sue has developed and managed the Lymphoedema service for Mid & North Bucks based at Florence Nightingale Hospice, Aylesbury. The service is nurse led & treats Primary & Secondary Lymphoedema along with an increasing caseload of chronic oedemas, primarily on an outpatient clinic basis, but with input into the acute sector, FNH Hospice, community. Sue is also part of a team of clinical trainers for the Lymphoedema Training Academy, training in FG-MLD Fill & Flush© & Haddenham Healthcare, delivering education & training to healthcare professionals involved with chronic oedema /lymphoedema management.