Speakers

Sharie Fetzer, Chairperson, Chair , Lipoedema UK

Sharie has been involved in Lipoedema UK since its early beginnings. She initiated the development of its first patient survey in 2014 which exposed that only 5% of patients had been diagnosed by their GPs and how it took an average 30 years to obtain a diagnosis. These findings led to Sharie's involvement as part of the team to develop the RCGP’s e learning course on lipoedema. In 2017, Sharie was part of the task force for Wounds UK Best Practice Guidelines, which is recognised internationally as the most comprehensive to date. Sharie has represented Lipoedema UK at numerous events including the ILF 2018 in Rotterdam, BLS annual conferences and the BJCN’s annual Lymphoedema Conference in London. Sharie’s latest project is analysing and publishing the results of Lipoedema UK’s latest patient survey, Compression Garments and Liposuction as Treatments to Manage Lipoedema. Sharie has also been working with BBC TV on a feature on Lipoedema due to air shortly. In March 2019 Sharie take part in the 2nd Lipedema Forum on Lipoedema, an Essity sponsored event which will bring together leading medical experts from around Europe.

Dr Beverley de Valois, Chair of Scientific Committee, British Lymphology Society

Judith Whatley, Senior Lecturer in Complementary Healthcare, Cardiff Metropolitan University

Judith Whatley is a Senior Lecturer in the School of Sport and Health Sciences at Cardiff Metropolitan University lecturing in research methods and bodywork. A Psychology graduate, she holds a Masters in research methods in social science, is a fellow of the Higher Education Academy, and a reflexology practitioner. Her research centres around breast cancer related lymphoedema and reflexology - publishing in 2016 and 2018. She has also completed research into the use of thermal imaging and the progress of lymphoedema in real time, and is currently exploring the impact of reflexology lymphatic drainage on a range of other conditions.

Rebecca Elwell, Macmillan Lymphoedema Nurse Specialist, University Hospitals of North Staffordshire NHS Trust

Rebecca is the Macmillan Lymphoedema Advanced Nurse Practitioner at the University Hospitals of North Midlands NHS Trust. She is a member of the children with lymphoedema special interest group and a member of the scientific committee of the British Lymphology Society (BLS) of which she was chair for five years and is now a trustee. She is a regular presenter in both national and international conferences and is on the editorial board for the Journal of Lymphoedema and the British Journal of Community Nursing’s Chronic Oedema supplement. In 2017 she won the British Journal of Nursing Chronic Oedema Nurse of the Year award and in 2018 was a finalist in the Nursing Times awards.

Rucha Kurtkoti, Editor, British Journal of Community Nursing

Rucha holds a master’s degree in microbiology and has worked in the academic publishing industry for almost 15 years now. Before joining the Mark Allen Group as the editor of the British Journal of Community Nursing at the end of November 2018, she ran a small editing business of her own from home, where she would help non-native research writers have their work published in top-tier journals. Rucha has also worked at various research laboratories in the past, including a virology institute and a molecular biology lab.

Gabriele Erbacher, Dipl. Psych, Foeldi Clinic Germany, European Center of Lymphology

Gabriele Erbacher has been a psychologist and psychotherapist in the Foeldi Clinic- European Center of Lymphology - in Hinterzarten, Germany, since 2013. Her special working fields are the psychological assessment and treatment of obese patients within the obesity programme. In this multimodal programme severe obese patients are being prepared for bariatric surgery. Furthermore, she is a specialist for the treatment of patients suffering from lipoedema. In the Foeldi Clinic she has implemented the first psychotherapy group for lipoedema patients that complements the comprehensive therapeutic approach. She also is a member of the European Lipoedema Forum, which is the international expert group that created a consensus on the diagnostics and treatment of lipoedema that will be published in February 2020. Gabriele is the co-author of the article series about Lipoedema - Myths and Facts that has been published together with Dr. Tobias Bertsch and she is lecturing worldwide about lipoedema.

Mary Woods, Nurse Consultant Lymphoedema Services , The Royal Marsden Hospital

Mary is a qualified nurse specialising in the field of cancer related lymphoedema. As professional lead and clinical expert in lymphoedema at The Royal Marsden Hospital, she provides a rich source of knowledge for her team, other therapy services and the wider professional groups. Her educational role facilitates the training of health care professionals in all aspects of care for the patient with lymphoedema. Mary has an acknowledged national and international reputation. She has published and presented widely, contributes to national working groups to improve the care of patients with lymphoedema and is an external expert for the development of European quality standards for breast cancer services.

Dee Stringer, Private Lymphoedema Therapist , Swelling Matters

Dee began her caring profession at the age of 14 years when her first love of looking after others was encouraged on work experience from school. After finishing her grammar education, Dee joined H.M. Forces to commence her nurse training. Travelling the world and nursing a diverse array of conditions. Dee remained in the army for six years. Once in civilian life, Dee progressed onto nursing complex conditions in High Dependancy units, orthopaedics and cancer care. Having progressed her education in care from Enrolled Nurse to Registered Nurse, Dee then went on to specialise in tissue viability, collaboration and palliative care. It was with the latter that Dee found her natural talent of connecting with people with swelling and painful limbs. She has specialised in the management of swelling since 2011 and devotes her time to actively listening to patients' concerns and providing individualised treatments for each and every person.

Margaret Sneddon, Vice Chair, British Lymphology Society

Margaret is the current Vice Chair of the British Lymphology Society (BLS) and is leading the 2020 #EveryBodyCan Campaign to promote being active with Lymphoedema. She has championed Lymphoedema and Lymphoedema education for over 30 years in both clinical, education and senior management roles and as a member/trustee of BLS. Her passion for, and contribution to, improving practice, awareness and knowledge of Lymphoedema has been recognised in several awards including the Chronic Oedema Nurse of the Year (BJCN), Outstanding Achievement in Lymphoedema Education (International Lymphoedema Framework) and Lifetime Achievement Award (BLS).

Tracy Green, Clinical Manager, Sigvaris Group Britain

Tracy has been involved in the field of lymphoedema for 30 years initially as a lymphoedema patient, then a District Nursing Sister with a special interest in lymphoedema and finally as a Lymphoedema Nurse Specialist. Having set up and run a successful lymphoedema service in Yorkshire for over 20 years, she was awarded the Lymphoedema Nursing Award in 2011 for the introduction of a key-worker service in the community. In 2015 Tracy moved to take up her current position with Sigvaris being responsible for clinical information and assessment, education (including the development of CPD modules for Chronic Oedema and Venous Leg Ulceration) and product innovation. Her passion for managing Chronic Oedema has never faltered and she feels that the more we are able to provide effective therapy, the better our patients are going to respond. Tracy has presented at national and international conferences and published several papers related to lymphoedema and Chronic Oedema management.