Thursday 13th February, 2025
America Square Conference Centre
This presentation will provide an overview of the patient perspective focusing on matters most along the patient journey. Nicole Faccio-Otero, was born with what now is known as WILD syndrome, which is a genetic mutation that causes malformations of the whole lymphatic and immune system.
Highlight the benefits of early use of adjustable compression systems in the management of oedema and wound healing, comparing available systems, looking at easy of use and application to promote self management and encourage independence.
Exploring the level of compression delivered by the systems available.
What a difference increasing awareness makes. Kate's mum had a life and death complicated by years of undiagnosed lipoedema & lyphoedema, with everything ascribed to obesity. Kate's disagnosis & involvement in lipoedema advocacy has given her a totally different experience. Kate will contrast her experiences and those of her mother and talk about determining what living your best life with lipoedema can look like, and the difference accurate diagnosis makes on personal perceptions of control.
This session will highlight the importance of joint working with allied health professionals, other medical specialties and organisations like the BLS and Legs Matter to help promote and improve the mobility profile for people with LEL.